The first step is to make sure you’ve signed the petition!
The second is to join Baby Oakley in writing to the Queensland Health Minister, urging her to include SMA screening in the newborn heel-prick test.
All you have to do is fill in your details below to send this letter to the Queensland Health Minister
At eight weeks old, Baby Oakley was diagnosed with Spinal Muscular Atrophy, permanently impacting her general movement, ability to swallow and breathe.
SMA is the deadliest genetic disorder for children, and the most common, genetic, cause of death in children under the age of two.
Minister, we must take action now to include SMA screening in the newborn heel-prick test in Queensland.
This will save lives.
Minister please join with me as I Move for Oakley.”