A summary of the media coverage of our efforts so far, with many thanks to the journalists and media organisations that have supported our campaign & family.
Sunrise (29 March 2021): A devastated family has launched a petition demanding the Queensland government join other states by offering parents the spinal muscular atrophy test for newborns after their daughter was diagnosed with the deadly condition.
9News (29 March 2021): Two baby girls born with the same rare muscular condition will live very different lives, simply because a $10 life-saving test sold in New South Wales isn’t available in Queensland.
DailyMail Australia (29 March 2021): Devastated parents of a sick little girl slam Queensland for refusing to give babies a simple health test which could change their lives – despite costing just $10 in NSW.
Courier Mail (29 March 2021): Spinal muscular atrophy: AMAQ, Laura Gerber push for $10 heel test
Sunrise (29 March 2021): Queensland family left devastated after baby not offered life-saving test
7News (29 March 2021): Interstate babies highlight national problem with newborn screening
Courier Mail (29 March 2021): Spinal muscular atrophy: Tragic tale of two babies called Oakley
Mamamia article (16 February 2021): If baby Oakley was born in NSW and not QLD, she might have had a chance at a normal life
kidspot article (09 February 2021): Spinal Muscular Atrophy SMA: Parents in shock after told ‘healthy’ baby wouldn’t live six months
TODAY video (07 February 2021): Running for Oakley